Francesca and Lee Moore-Williams held their beautiful 18 month old daughter Bella’s hand as her ventilator was turned off and they waited for her death. But just 30 minutes later, Bella awoke “kicking and screaming” according to the UK’s Mirror newspaper article “Miracle baby whose life support was turned off home for Christmas”. Five months later, she is scheduled to come home this Christmas.
Bella’s health became a concern in April when clumps of her hair fell out. Three months later, she took a turn for the worse and was admitted to a hospital in critical condition. Doctors told the parents that a MRI scan showed abnormalities on both sides of her brain and at some point, the decision was made to turn off the ventilator supporting her breathing.
According to the Mirror article:
She was later diagnosed with the genetic disorder Biotinidase deficiency, which is so rare it affects just one in every 60,000 births.
Sufferers of the condition do not produce enough biotin – a vitamin which is essential for healthy cell growth.
The deficiency can be fatal if left untreated but will now be managed safely with tablets.
Bella, of Clacton-on-Sea, Essex, who turns two in January, is now learning to walk and talk and her hair is growing back.
Experts say she is around eight months behind other children her age but she is expected to catch up.
Francesca said: “She’s at nursery and to look at her you wouldn’t think she’s been through what she has.
Perhaps this Christmas “miracle” also holds a message about the need for hope and humility for those of us in the medical professions.
Merry Christmas and Happy Holidays to all!