Sheryl Crosier, the mother of Simon, a baby with Trisomy 18, and I, with my baby Karen who had Down’s Syndrome and a severe heart defect, worked for years to get a law passed In Missouri to get our children protected from the lethal medical discrimination against children with disabilities we encountered (See my 2016 blog “ My testimony for Simon’s Law” )
Sheryl worked hard to get other states to do the same and in 2020, I wrote a blog titled “Strongest “Simon’s Law” Yet is Passed in Iowa” .
Now, Sheryl and Allies of Simon’s Law have had HR-6344 (The Simon Crosier Act) introduced into Congress.
Nancy V.
Legislative Action Alert for Congressional HR-6344 (The Simon Crosier Act) – All Star Press.com
Legislative Action Alert for Congressional HR-6344 (The Simon Crosier Act)
RNILSEN12 FEBRUARY 9, 2024 3 MIN READ
The Board of Directors of Simon’s Law, a nationwide network of families, guardians, and professionals dedicated to creating national awareness and protection for medically endangered pediatric dependents with life-threatening diagnosis through education, accountability, parental rights legislation, and Patients’ Bill of Rights, calls on all citizens to petition their congressmen to support The Simon Crosier Act.
HR-6344 (The Simon Crosier Act) proposes to amend titles XVII and XIX of the Social Security Act to require providers of services and health maintenance organizations under the Medicare and Medicaid programs to provide for certain policies to be in place relating to do-not-resuscitate orders or similar physician’s orders for unemancipated minors receiving services.
The Simon Crosier Act (HR-6344) is currently waiting for the House Committee On Energy and Commerce to mark it up. Please take a moment to reach out to committee members, especially Chairwoman Rodgers (R-Washington) at (202) 225-2006, with the following message:
“My name is your name, I am the parent of a child with a life-limiting diagnosis, who is at risk of having resuscitative measures withheld without my consent, with every hospitalization in your state. Therefore, I urge you to mark up HR-6344 (The Simon Crosier Act), so that it has the opportunity to move beyond the House Committee On Energy and Commerce to protect my parental right to be included in DNR determinations for my child.“
REPUBLICAN:
1. Cathay McMorris Rodgers, WA (202) 225-2006
2. Michael C. Burgess, TX (202) 225-7772
3. Robert E. Latta, OH (202) 225-6405
4. Brett Guthrie, KY (202) 225-3501
5. H. Morgan Griffith, VA (202) 225-3861
6. Gus M. Bilirakis, FL (202) 225-5755
7. Larry Bushon, IN (202) 225-4636
8. Richard Hudson, NC (202) 225-3715
9. Tim Walberg, MI (202) 225-6276
10. Earl L. “Buddy” Carter, GA (202) 225-5831
11. Jeff Duncan, SC (202) 225-5301
12. Gary J. Palmer, AL (202) 225-4921
13. Neal P. Dunn, FL (202) 225-5235
14. John R. Curtis, UT (202) 225-7751
15. Debbie Lesko, AZ (202) 225-4576
16. Greg Pence, IN (202) 225-3021
17. Dan Crenshaw, TX (202) 225-6565
18. John Joyce, PA (202) 225-2431
19. Kelly Armstong, ND (202) 225-2611
20. Randy K. Weber, Sr., TX (202) 225-2831
21. Rick W. Allen, GA (202) 225-2823
22. Troy Balderson, OH (202) 225-5355
23. Russ Fulcher, ID (202) 225-6611
24. August Pfluger, TX (202) 225-3605
25. Diana Harshbarger, TN (202) 225-6356
26. Mariannette Miller-Meeks, IA (202) 225-6576
27. Kat Cammack, FL (202) 225-5744
28. Jay Obernolte, CA (202) 225-5861
DEMOCRAT:
1. Frank Pallone, Jr., NJ (202) 225-4671
2. Anna G. Eshoo, CA (202) 225-8104
3. Diana DeGette, CO (202) 225-4431
4. Janice D. Schakowsky, IL (202) 225-2111
5. Doris O. Matsui, CA (202) 225-7163
6. Kathy Castor, FL (202) 225-3376
7. John P. Sarbanes, MD (202) 225-4016
8. Paul Tonko, NY (202) 225-5076
9. Yvette D. Clarke, NY (202) 225-6231
10. Tony Cárdenas, CA (202) 225-6131
11. Raul Ruiz, CA (202) 225-5330
12. Scott H. Peters, CA (202) 225-0508
13. Debbie Dingell, MI (202) 225-4071
14. Marc A. Veasey, TX (202) 225-9897
15. Ann M. Kuster, NH (202) 225-5206
16. Robin L. Kelly, IL (202) 225-0773
17. Nanette Diaz Barragán, CA (202) 225-8220
18. Lisa Blunt Rochester, DE (202) 225-4165
19. Darren Soto, FL (202) 225-9889
20. Angie Crian, MN (202) 225-2271
21. Kim Schrier, WA (202) 225-7761
22. Lori Trahan, MA (202) 225-3411
23. Lizzie Fletcher, TX (202) 225-2571
The contact list of politicians and their office contacts is available from the public Congress website for the Committee On Energy and Commerce.
For further information or media inquiries, please contact:
Sheryl Crosier – Mother of Simon, Founder of Simon’s Law – Sheryl@SimonsLaw.org
Sand Enzminger – Director of Operations, Simon’s Kids – Sandi@SimonsLaw.org
Website: www.SimonsLaw.org